This week has been tough. We came three times to the ER and yet we still don't know what is wrong with Jorge. He came in for his dilation, and they scoped his stomach, and they saw nothing. We went home, and while we were home the baby starting to poop blood. We thought that maybe it had to do with the whole scoping thing, so we waited to see. A few minutes later, it happened again but this time it was heavier, we got so scared that again we took him to the emergency room. He has diarrhea and blood in it. At the hospital, his surgeon came to see us, and explained to us that he swallowed blood during his dilation, and that it is normal for the body to react this way. He told us to give it 24 hours to clear, and that if not we needed to come back. We were discharged, and went home thinking that everything was fine.
While at home the blood in the stools went away, but the baby had 19 dirty diapers. The more pedialite we gave him the worst it got. We had a miserable night. The baby was so weak he would just make a squeak, he could not even cry, so again we ran to the ER. I guess doctors felt bad that we had already been there 2 times, told them something was off, and the response was, "your baby is fine, he is doing normal baby stuff, welcome to parenthood". He was very dehydrated, and feeling very sick. They had to start an IV, and of course his veins were no where to be found. Finally after 4 or 5 attempts, they were able to start fluids. They also did a CBC, and as always, it showed no signs of infection. The weird thing is, the baby is running a fever, he is not peeing, and still has diarrhea. This is the story of his life, something is up, but it just will not show.
We have been scared the entire day because of his lack of urine. The inserted a catheter all the way into his bladder, and nothing came out. They told me he was very very dehydrated. He is still not tolerating feeds, and he looks miserable. Doctors agreed with us, that something is wrong, and are trying to figure it out. In the mean time, we have been readmitted to the Hospital. This time we have a private room, with two couches for both of us to sleep in. It is really nice, and everyone has been very attentive. We are just exhausted, sleep deprived and anxious . . . . not a great combination!!!!!! We are hoping that something will come up in the urine, stool, and blood culture, so we can treat and go home and go back to normal!!!
Today is also a special day!!! Jorge turns 6 months. As always we took pictures, and will post as soon as I can download them. Jorge seems to like this place, every time we celebrate a month of age we are here!!!!! LOL he likes the attention I guess!!!! Last month he had a dilation, and now he is sick!!!!! Well its Jorge's way or the highway . . . .we just need to get used to that!!!!
