Tuesday, August 31, 2010

I can crawl!!!!

So today was one of those days that started awful and ended amazingly great. We had been waiting all day long for results on a kidney test they did on the baby. They found glucose in his urine and this did not look good. I think I called the doctor's office about 4 times, and then Jorge called another 4 times until the doctor finally called us with results. The waiting to see how his kidney was working, whether or not it could be diabetes, or if it was just another genetic condition; was driving me crazy. I did not want to get out of bed, I was just so sad, but then, we got the call and thankfully it was good news. He is doing just fine. It was just a scare, everything is perfect, and his kidney is functioning better than two of them together!!! He also started crawling, and he learned to sit up, all in one day. We are just so proud of our little guy!!!!!

Monday, August 30, 2010

Happy Birthday Mommy!!!

My boys and my gifts!!!!!


This past week was my birthday. Jorge and LJ went shopping for my birthday gifts. Since I turned 30, they decided to give me 3 gifts. Jorge gave me two gifts himself, and then hid really well the gift that LJ chose for me! It was fun to search around our apartment to see what it was!!! I got a new picture camera, matching earrings and bracelet, and a watch I had been wanting for a while. The same day of my b-day my brother and law and his girlfriend arrived, they took me out for lunch, and then at night we were so tired that just decided to go to Chili's and have one of my favorite desserts, a chocolate molten!!! They sang happy birthday to me, and then we went home and slept!!!!
LJ has been doing great. He has been learning more and more tricks. He can clap now, so we love to show everyone all the things the baby can do. We just cannot wait for him to start crawling, he is about to. It is just a matter of time. We are still struggling with his eating, but we will get there sooner than later.
On Saturday we went out and celebrated my birthday with some good friends. We took the baby, he was just so good. He just sits and plays in his stroller, and allows us to enjoy. I could not have asked for a better behaved baby.
I have been trying to decide what I want LJ to be for Holloween. I have been thinking to dress him like Woody from ToyStory . . . still undecided. I guess as I do some more shopping I will find something that I just will love.

Sunday, August 22, 2010

I can talk!!!

We just came back from our trip to Colombia. Jorge has been very active, he learned how to go from a sitting to crawling position, and he keeps shifting from one position to the other. He has also started to vocalize, its more like a scream, but he will say Aaaaaaaaaaaa, or ooooooooo, and finally last night he started saying two syllable words. . . he said Ta-ta and Pa-pa which is daddy in spanish!!! we were super excited to see him finally starting to talk, I was a bit upset that he said pa-pa before ma-ma!!!! LOL!!!!

Monday, August 16, 2010

Slow and steady wins the race!!!







We have been in Colombia for the past 3 weeks. Jorge has been improving tons. We have been working really hard on his feedings, but still have not able been to get to that place where he just enjoys eating, and where food is a normal daily activity, and not a constant struggle. I know we will get there, I just need to be patient.

He has learned lots of new tricks. He can wave hello!, he turns from his back to his belly, he reaches for his feet, he picks what toys he wants to play with, he maintains his balance when sitting, he sits as he reaches for objects above his head, he nods with his head (sometimes), he sits up on his own when on his stroller, he can get into crawling position and rock himself almost ready to start crawling, he can stand up on his own when grabbing your hands . . . he has learned so much in this past month that we are just truly amazed of what a strong little man he is.

I did not want him to stop improving, so I found therapists here that could either help him get better, or at least not go backwards. They love him so much, there is just something about him that attracts people, I cannot explain what it is, just hope that as he grows he gets to use this special thing for something good!!!!!!!

We also introduced LJ to Sussy (our dog). We were a bit nervous at first. We did not know if she would not like him and try to bite, or if he just would be scared and not want to have anything to do with her, but they bonded since the first time they met, It was just super cute!!!!!!

He has been spitting a lot, we are a little bit concerned because we do not know if his fonduplication is loosen. We are afraid that the reflux will make him stricture more often than normal, so as soon as we are back first stop will be Dr. Tsao, followed by his pediatrician, pulmonologist, GI doctor, nepfrologist, and any other doctor that I might be leaving out, it will be two very hectic weeks!!!!

LJ's grandparents came to visit, we had a lot of fun. they loved that the baby can now interact with them, and respond to games, they were holding him all the time. The baby just enjoyed the attention so much, they left last night, we feel kind off lonely, but hopefully we will have some more visitors coming our way soon!!!

Jorge is just a very happy baby, he is growing super fast, and changing everyday!!! We are very blessed to have him in our lives!!!!!

Enjoy the pics!!!

Monday, August 2, 2010

Jorge the Jet setter!!!











The last two weeks have been crazy!!! We had been preparing for a long trip with the baby. I had to pack a few days ahead of our departure dat to make sure nothing was left behind. Traveling with a baby is hard, traveling with a baby with special need triple hard.

We consulted with LJ's surgeon to make sure we could leave for a month, and decided it would be good to get a dilation before we left. We were not super happy with the idea, it was just going to make my week more complicated. I had back to back therapy appointments, I had to do packing, laundry etc etc, last minute shopping, and a dilation!!!! but in the end it al worked out great, and we were able to get everything taken care of!!!

We took LJ to get his first haircut!!! We went to a kids place, they had TV's, and little chairs that looked like racing cars, he was really into the decoration, not so much into the haircut, he cried, and screamed, and moved . . . we made a video, this will be a great memory, but the end result was great, our little man looked just too cute!!!!!!!!

The day finally arrived for us to leave for a nice relaxing week to Aruba. Aruba was not in our original plans, we were only going to go to Colombia, but we decided to celebrate my husband's grandparents 50th anniversary. We had a great time, and were able to rest. The party was great, we dressed the baby in the mini version of Jorge's outfit, they looked super cute!!! Everyone was super excited to meet him, and see how much he had grown, and progresses. This kid is very special, he has so much people praying and loving him. God only knows what he will become in life, but we are sure it is going to be something great just like him!!!!!

We took him to the beach for the first time, he loved it. We bought a baby floating device, or lifesaver (however it is called), he just sat there and relaxed. He was really into the waves, the scenery, the water, everything the beach had to offer, he even liked feeling the sand. He just had a great time, and so did we. Watching him grow and change so much is just a blessing.

So our Aruba stay came to an end, and we had to get everything ready for our flight to Colombia. Well thing went OK!!! We had no delayed flights, we had great seats on the plane, but as we were getting ready to leave we realized we had a 3 hour connection in Panama!!!! We sat for 3 hours until it was time to go home!!!! We arrived a little bit late, and Bogota was freezing. We went from 100 degrees to 50 degrees . . . . and of course we were not prepared so now we are home and LJ has a bit of a cold. Thankfully we brought his suctioning machine, and it has been really good!!!!

Last night we put Lj to nap on our bed. It was not a great idea. First he had a wet burp or a huge spit I would have to say. It got all over our sheets . . . and then, he peed so much, that it got out of his diaper, and once again all over the sheets!!!! Amazing huh?????? This kid may have just one kidney but it sure does work for 3!!!!!!!!!! LOL!!!!

Last night he turned 9 months old. Like every month we made a little sign, and started taking pictures!!! LJ decided to hold his sign, pose for the camera, and then after he got tired of doing that, he decided he would eat the sign!!!! He eats paper, blankets, toys, my fingers, nut when it comes to food, he decides to shut his mouth or blow raspberries!!! He is quite a character!!!!!

Enjoy the pictures!!!