Time Flies!!!

The last few months have been crazy. We moved from Houston to Miami. We have been traveling all around, and as usual Jorge has had a few surprises to throw at us.He had been eating without the use of the tube for about 5 months and then one day he just woke up, and decided he no longer wanted to eat. We tried everything and nothing seem to work, so after two days of struggles we went back to gtube feeds. It really felt like a set back, but in the end we realized that if he had stopped eating, there just had to be a reason.

The not wanting to eat episodes were followed by vomiting, and constant reflux, so we decided it was a wise idea to find a doctor in Miami that could see him. We got very used to the hospital in Houston, and prompt replies from all the medical staff so when we tried to make an appointment, we were kind of expecting the same VIP treatment, but instead we were given an 8 week wait . . . . . not really good when your child has a history of medical issues. To make a long story short, we had to fly back to Houston to have him seen. When he was seen by his doctors we were told that for a second time Jorge had blown his fonduplication, and that we needed to find a new solution for his issues. The solution given was gastric bypass. There was no way we were going to let them do this to him. He has weight and growth issues, he hardly has an appetite, so to me this was just the craziest idea I had ever heard (doctors also suggested he would have to tube feed for an undetermined amount of time). While a solution was found he had a GJ tube placed, which I hate, but it is helping him, he has gained 5 lbs ever since!!!!

After hearing the bad news, we basically put our thinking caps on and started looking for other alternatives. We found a hospital that has a program just for kids like Jorge. They have an esophageal atresia program!!! how cool is that? We immediately started getting everything going and started planning for our trip to Boston. We are not only going to a hospital that has a program that specializes in his condition, but also the number 1 hospital in the United States. How lucky are we???? We are always finding ourselves in trouble with this little man, but at the end of the road God just works his miracles and shows us the way to a solution!!!!

On a happy note, Jorge started school . . . as always he just won everyone's heart and he is loving it to the point that when i drop him off he will just turn around say bye-bye, and walk away. We had two different weddings where he just danced the night away (this boy is going to be trouble all the way), he was the ring bearer at one of the them and did an excellent job. He has been growing and getting cuter by the day, and his hair has finally grown to where the scars from his head surgery can no longer be seen; and he no longer has to wear his helmet!! WHOOP WHOOP to that!!!! We also took him to the Miami Seaquarium, and he just loved the dolphins and Lolita the killer whale, we had a blast!!!!!!!!!!

We are flying to Boston this weekend, and seeing his new doctor on Monday. Testing will start Tuesday, and surgery will probably be the following week!!! We are very hopeful that we can finally put an end to his GI issues, so that we can move forward and give him a better quality of life.

Also we are one month away from his 2nd birthday. We were planning on celebrating this one big, but with surgery in the future we might have to postpone the big party until next year!!!